Genomics, Populations, and Society Genomic and Precision Medicine in Clinical Practice Series

Genomics, Populations, and Society, a new volume in the Genomic and Precision Medicine in Clinical Practice series, considers the vast and thorny web of ELSI topics in genomics, from bioethics to healthcare applications, healthcare economics, genomic data management, and population dynamics. Emphasis is placed on the impact of rapid genomic advances on ethical, sociocultural and lifestyle dimensions. Healthcare and health economics topics include genomics and digital health, genome editing, and genomics and infectious disease management. Legal issues related to data ownership, equity, access, probity, consent, and confidentiality are also discussed in-depth, along with sociocultural topics such as community engagement, consanguinity, and more.Here, a range of readers from researchers to clinicians, policy administrators, lawyers, economists and social scientists will discover carefully crafted, synthesized discussions on ELSI topics in genomics to power new scientific advances and genomic medicine implementation.

Section I Scientific aspects
1. Introduction to genes, genomes and genomics
2. OMIC science and technologies
3. Population genomics
4. Genome technologies including computational genomics
5. Bio-banks- organisation and the role

Section II Healthcare applications
6. Genomic and Precision Medicine
7. Genomic Healthcare & Genomic health screening
8. Genomics and Digital health
9. Genomics led health economics- Consumers and State funded
10. Therapeutic genomics including gene/ genome editing
11. Genomics and Infectious diseases: Lessons learnt from Covid-19

Section III Socio-Cultural Aspects
12. Community engagement- population understanding, attitudes
13. Consanguinity – genetics and genomics dimensions
14. Genomic dimensions of Faith, Spiritual beliefs and Socio-cultural customs
15. Genomic literacy and continued learning
16. Psychosocial aspects of biobanking

Section IV Ethical Aspects
17. Population health ethics & genomics
18. Accessibility, Equity & Harmonization of genomic gains
19. Research governance and ethics- the European Model
20. Ethical and economic aspects of ecogenomics

Section V Global health genomics
21. Global genomic initiatives
22. The H3 Africa project and outcomes
23. Genome databases
24. Commercialization of genomic outcomes
25. Law, statutory regulations and safeguards

Ruth Chadwick is Distinguished Research Professor and Director of the ESRC (Economic and Social Sciences Research Council) Centre for Economic and Social Aspects of Genomics (Cesagen), at Cardiff University, UK and Link Chair between Cardiff Law School and the School of English, Communication and Philosophy (ENCAP). Professor Chadwick has coordinated a number of projects funded by the European Commission, including the EUROSCREEN projects and co-edits the journal Bioethics and the online journal Genomics, Society and Policy. She is Chair of the Human Genome Organisation Committee on Ethics, Law and Society, and has served as a member of several policy-making and advisory bodies, including the Panel of Eminent Ethical Experts of the Food and Agriculture Organisation of the United Nations (FAO), and the UK Advisory Committee on Novel Foods and Processes (ACNFP). She was editor-in-chief of the first edition of the award winning Encyclopedia of Applied Ethics. She is an Academician of the Academy of Social Sciences and a Fellow of the Hastings Center, New York; of the Royal Society of Arts; and of the Royal Society of Medicine. In 2005 she was the winner of the World Technology Network Award for Ethics for her work on the relationship between scientific developments and ethical frameworks. She graduated with first class Honours Literae Humaniores (Philosophy and Greek and Latin Literature) from the University of Oxford, and then went on to take the B.Phil. in Philosophy. She was awarded her D.Phil. on The Ethics of Eugenics and Genetic Engineering, supervised by Jonathan Glover. She completed an LL.B. (externally) at the University of London. She held positions at the University of Liverpool, St. Martins College, Lancaster, and University of Wales, Cardiff, before taking up her post as Professor of Moral Philosophy at the University of Central Lancashire. In June 1995 she became Head of the Centre for Professional Ethics at the University, a position she still holds. S